□ KoPHWA successfully completed the “22nd PKU Family Camp” held from July 11th to 12th at Sol Beach Yangyang, Gangwon Province.

○ KoPHWA, in collaboration with the Ministry of Health and Welfare, has been organizing this family camp annually since 2001. The camp aims to share the latest information on dietary management for PKU (Phenylketonuria), a rare and incurable metabolic disorder caused by a deficiency in a specific enzyme needed for protein metabolism. It also fosters emotional bonds among families and provides support to children diagnosed with congenital metabolic disorders and other rare conditions.

□ Over 200 participants, including patients, their families and event staff attended this year’s 22nd family camp. The camp featured various programs such as PKU treatment-updates, health management case presentations, water play activities, caricature sessions, and recreational activities.

○ Notably, during the case presentations, adult patients shared their personal health management techniques and experiences overcoming PKU, offering hope and deep empathy to other patients and their families, which received much applause.

□ Additionally, companies that have consistently supported the camp, including Maeil Dairies, CJ Cheil Jedang, Korean Medical Food, and Handok, participated again this year. New contributors such as Namyang Dairy and Daesang Well Life also joined in supporting PKU patients.

○ These companies not only support the camp but also assist with providing special infant formulas and low-protein meals for PKU patients, offering practical help in disease management and daily life.

□ Lee Sam-sik, president of KoPHWA said, “I hope the PKU Family Camp provided valuable opportunities for sharing the latest information and communication about the health and upbringing of PKU patients. KoPHWA will continue to support children with congenital metabolic disorders.”

Latest Updates

22nd PKU Family Camp Concludes Successfully